Archive for March, 2010

Little Bro is home

Sunday, March 14th, 2010

Henry Holding Archie at Home

Archie came home on Thursday and the screw-turning is now complete (we did the last couple of turns at home). He’s had one paediatrician appointment and tomorrow we’ll be making an appointment for him to get the other screw removed. With any luck that will be soon.

He’s doing well and is pretty mellow, all things considered. He’s letting us sleep pretty well in the night and the feed-burp-nappy-back-to-sleep routine is working out. One consequence of the jaw procedure seems to be that the left side of his face is palsied. It looks like there is some neural damage as there is no motor activity in his left cheek. Of course we don’t know if he can feel there or not. It’s too early to say whether this will be a long term issue or not, but this was always a risk. Unfortunately it seems to make it hard for him to close his left eye – he only gets it about 3/4 closed most of the time – which makes getting to sleep that bit harder. It doesn’t seem to interfere with eating though.

Quick update

Saturday, March 6th, 2010

The op today went well, and now he has a nose trumpet in rather than an ET tube. So that must be a bit more comfortable for the little guy.

Now, we wait another 7 days for the distraction to run its course (again).

Latest – a setback

Thursday, March 4th, 2010

The plate that is in the left side of Archie’s jaw broke a couple of days ago. This has caused his jaw on that side to slip back by some millimetres. The rod is partly sticking out and the asymmetry of his jaw is visible from the outside. So after an x-ray it has been determined that he needs to have the distraction done again on that side.

This means another 2 weeks in hospital just when we were gearing up to have him at home (otherwise he has been doing well, bottle feeding, off the IV, etc). He will have the operation at 7.30am on Friday. There will be 7 days of screw-turning this time, followed by the op to remove the external pieces again, followed by a period of convalescence which will, with luck, be shorter than before.